Information
News
As year end approaches, please consider a gift to Action CIND. It has been a difficult year for all and our donations have been hit hard. Your help at this time would be greatly appreciated. Please visit our updated Donate page. We have worked with Canada Helps to provide more options for giving. You can now give monthly, “in memory of” and “in honour of”. There is also an option to subscribe to our newsletter.
The deadline for making a donation to receive a 2020 tax receipt is December 31, 2020 at 11:59.
Previous News
We are pleased to announce several new benefits for Action CIND contacts. (e.g. volunteers, subscribers, newsletter subscribers, Action CIND support group members and donors) .
- Smarter technology for all! Lenovo, the #1 PC maker in the world, offers up to 35% off a rich portfolio of computing technologies that include high functioning, multi-use, cutting edge Laptops, Desktops, Smart Devices, Accessories, Tablets and more. Subscribers will be granted access to a special website upon completion of an agreement to keep the site confidential. If you’d like to become a subscriber, please see the details in our Subscriber section. Contact Action CIND at info@actioncind.org if you would like to take advantage of these great savings.
- We have also arranged to have a CAA Corporate Membership , that is open to all Southern Ontario Action CIND contacts. For each person that joins, CAA will donate $5 to Action CIND. See the attached Flyer for details and benefits. ACTION CIND CAA flyer
- We have also arranged with DELL Computers to get access to award-winning desktops, laptops, tablets, servers, and accessories — so you can get exactly what you need to work the way you want. Dell is offering up to 45% off of Dell products. As with the Lenovo benefit, this is open to current and new subscribers.
- Dr Eleanor Stein MD FRCP(C) has launched a new self management program called Pathways to Improvement. Details of the program can be found on her website www.eleanorsteinmd.ca. It is known that self management can be very beneficial for individuals with chronic illness. To assist with the cost, Action CIND will make available to members in good standing, a bursary in the amount of $15 Canadian upon the completion of her program.
Lenovo Monthly Flyer
Contact Action CIND at info@actioncind.org if you’d like to explore these savings.
See the attached monthly flyer for details.
Webinars
The following webinars are scheduled for 2020 for education sessions on Life with ME/CFS.
Please register with the links provided below.
June 4 – https://zoom.us/webinar/register/WN_td5tJFdSQ0iGWHVL6LT6WA
May 12th
2020 marks the 28th anniversary of May 12th International Awareness Day. As one of our education initiatives, we promote the day around the world and encourage people to participate in in the many activities that are planned. Additional information can be found on our website www.may12th.org.
Subscribers
Join Action CIND as a subscriber and receive additional benefits. The cost is $30 per year. Please complete this form and mail to our office. We are working on developing our benefit package. Currently we offer the following:
- It is known that peer support can be very beneficial for individuals battling illness. Unfortunately for CIND patients, there are very few support groups available and many patients are not well enough to attend even if a group was available. We are aware of an organization that provides an online self-help group. They are the CFIDS & Fibromyalgia Self Help Program (http://www.cfidsselfhelp.org/) . They have excellent programs you can take from home. They charge a nominal fee. To assist with the costs, Action CIND will make available to members in good standing, a bursary in the amount of $10 Canadian upon completion of one of their online programs.
- Applying for CPP Disability and other coverages is a daunting task. Knowing what to do is a challenge. Our legal professionals have agreed to provide one pro-bono counselling session to any member in good standing that requires some support and direction. Often you can deal with the system on your own. Some do choose to hire professionals or legal aid due to the overwhelming nature of the task. Our lawyers will help you to understand the process so you can make informed choices.
- For Ontario subscribers, our Disability Consultant has experience reviewing legal bills for disability support cases for any evidence of double billing. This issue has recently been reported in the Toronto Star. Our consultant will review your initial contract and legal bills, providing the bill was issued less than 2 years ago. Should there be evidence of over billing, they will recommend a course of action.
- Our Disability Consultant is a former lawyer and past chair of the Canada Pension Plan review tribunals for the greater Mississauga and Toronto area. She has considerable experience assisting clients successfully apply and obtain disability benefits. As a Disability Consultant, she has offered to speak with Ontario subscribers for 20 minutes free of charge, to understand your situation and assess your chances of getting accepted for these disability benefits. If you are interested in her services, she will offer a substantially discounted hourly rate to help guide you through the process of obtaining disability benefits. Certainly she can suggest things you can do to improve your chances of success.
- Smarter technology for all! Lenovo, the #1 PC maker in the world, offers up to 35% off a rich portfolio of computing technologies that include high functioning, multi-use, cutting edge Laptops, Desktops, Smart Devices, Accessories, Tablets and more. Subscribers will be granted access to a special website upon completion of an agreement to keep the site confidential. If you’d like to become a subscriber, please see the details in our Subscriber section. Contact Action CIND at info@actioncind.org if you would like to take advantage of these great savings.
- We have also arranged to have a CAA Corporate Membership , that is open to all Southern Ontario Action CIND contacts. For each person that joins, CAA will donate $5 to Action CIND. See the attached Flyer for details and benefits. ACTION CIND CAA flyer
- We have also arranged with DELL Computers to get access to award-winning desktops, laptops, tablets, servers, and accessories — so you can get exactly what you need to work the way you want. Dell is offering up to 45% off of Dell products. As with the Lenovo benefit, this is open to current and new subscribers.
- Dr Eleanor Stein MD FRCP(C) has launched a new self management program called Pathways to Improvement. Details of the program can be found on her website www.eleanorsteinmd.ca. It is known that self management can be very beneficial for individuals with chronic illness. To assist with the cost, Action CIND will make available to members in good standing, a bursary in the amount of $15 Canadian upon the completion of her program.
Volunteer
Be part of our team! Volunteering allows you to directly participate in Action CIND program work. We are always looking for volunteers and can find you something that meets your needs. Please Contact Us for more information.
Websites
The following list of websites are made available to help you find information about May 12th International Awareness Day, the illnesses or supporting organizations.
If you know of any items that should be added, please “Contact Us”.
Australia
The Hummingbirds’ Foundation for M.E. (HFME) – www.hfme.org
Belgium
Belgium ME/CFS Association – www.me-cvs.be
R.E.D. Laboratories – www.redlabs.be
Canada
Action CIND – www.actioncind.org
Association Québécoise de l’Encéphalomyélite Myalgique (AQEM) – www.aqem.org
Brockville M.E Association – www.brockvilleme-fm.ca
Environmental Health Association of Ontario – www.ehaontario.ca
Fibromyalgia London Group – www.fibrolondongroup.ca
Kitchener-Waterloo Fibromyalgia Support Group – www.kwfibromyalgia.webs.com
MEFM Societies of BC – www.mefm.bc.ca
ME Research – www.meresearch.info
Myalgic Encephalomyelitis Association of Ontario (MEAO) – www.meao.ca
National ME/FM Action Network – www.mefmaction.com
Nightingale Research Foundation, Canada – www.nightingale.ca
Nova Scotia Environmental Health Centre – www.cdha.nshealth.ca/environmental-health-centre
Waterloo Wellington Myalgic Encephalomyelitis Association – www.wwmea.ca
Denmark
Dansk ME Forening – me-foreningen.dk
Germany
Fatigatio eV – www.fatigatio.de
Holland
Het Alternatief – www.hetalternatief.org
International
CINDpedia – www.cindpedia.org
International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis – www.iacfsme.org
Ireland
Irish ME/CFS Association – www.irishmecfs.org
Irish ME Trust – www.imet.ie
Italy
Associazione Malati di CFS – www.associazionecfs.it
Norway
Norges ME-forening – www.me-forening.no
Spain
Liga SFC – www.ligasfc.org
Switzerland
Verein CFS Schweiz – www.verein-me-cfs.ch
United States of America
CFIDS Association of America – www.cfids.org
CFIDS & Fibromyalgia Self-Help Program – www.cfidsselfhelp.org
Dr. Charles Lapp – Hunter-Hopkins Center – www.drlapp.net
Dr. Jacob Teitelbaum – www.endfatigue.com
Dr. Leonard Jason – DePaul University CFS Research – condor.depaul.edu/~ljason/cfs/
Environmental Working Group (EWG) – www.ewg.org
Health Rising – www.healthrising.org
International Association for CFS/ME – www.iacfsme.org
Invisible Diseases – www.invisiblediseases.com
MCS America – www.mcs-america.org
ME Action – www.meaction.net
ME-CFSKnowledgeCenter.com – www.cfsknowledgecenter.com
National CFIDS Foundation – www.ncf-net.org
National Fibromyalgia Association (NFA) – www.fmaware.org
Phoenix Rising – forums.phoenixrising.me
Prohealth Library – www.prohealth.com/library/index.cfm
Whittemore Peterson Institute for Neuro Immune Disease – www.wpinstitute.org
United Kingdom
Association of Young People with ME – www.ayme.org.uk
Dr Sarah Myhill MB BS – www.drmyhill.co.uk
Invest in ME UK – www.investinme.org
ME Association – www.meassociation.org.uk
ME Research UK – www.meresearch.org.uk
ME Support – www.mesupport.co.uk
Stone Bird – www.stonebird.co.uk
TYMES Trust (The Young ME Sufferers Trust) – www.tymestrust.org